NORD provides information about rare disorders, encourages and promotes research, and represents people who have rare diseases when it educates the public and medical professionals about these disorders.
Overview
NORD provides information about rare disorders, encourages and promotes research, and represents people who have rare diseases when it educates the public and medical professionals about these disorders. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. NORD offers medication assistance programs to assist uninsured or underinsured individuals in securing life-saving or life-sustaining medications; a confidential networking program for members to stimulate the exchange of information and mutual support with others who have the same disorder; a resource guide (fee); and a library of links to other organizations.
National Organization for Rare Disorders
56 Kenosia Avenue
Danbury, CT 06810
203-744-0100
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