Resources

ARCH works to assist and promote the development of quality respite and crisis care programs. They help families locate respite and crisis care services in their communities. Their Respite Locator can find respite services that match the individual’s specific needs. 703-256-2084 email: jkagen@archrespite.org

The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. They encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities. They have nearly 700 state and local chapters nationwide. 800-433-5255

The Angelman Syndrome Foundation is the largest non-governmental funder of Angelman syndrome-specific research. Angelman Syndrome Foundation 3015 E. New York Street, Suite A2 #285 Aurora, IL 60504 800-432-6432 email: Info@angelman.org

This organization provide information about hearing loss, provides scholarships and financial awards. It also promotes early detection of hearing loss in infants, publishes books about deafness, and advocates for the rights of children and adults who are hard of hearing and deaf. They have an online community to join, as well as emails that communicate happenings in the community. Alexander Graham Bell Association for the Deaf and Hard of Hearing 3417 Volta Place NW Washington, D.C. 20007 202-337-5221 or TTY 202-337-5221 email: info@agbell.org

f) ADvancing States was founded in 1964 under the name National Association of State Units on Aging (NASUA). In 2019, the association changed its name to ADvancing States. Today, ADvancing States represents the nation’s 56 state and territorial agencies on aging and disabilities and long-term services and supports directors. 202-898-2578

ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. http://adapt.org/adapt-groups/ to find a group email: adapt@adapt.org

A social network technology platform that gives youth with disabilities, parents, and professionals a safe secure and positive online experience, removes social barriers and reduces the stigma with being different, and promotes independence and better. Ability Online Support Network 114 Sun Row Drive Etobicoke, ON M9P 3J5 416-650-6207 email: information@abilityonline.org

AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. AAIDD's goals are to: enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities; promote the development of a society that fully includes individuals with intellectual and developmental disabilities; and sustain an effective, responsive, well managed, and responsibly governed organization. American Association on Intellectual and Developmental Disabilities (AAIDD) 8403 Colesville Road, Suite 900 Silver Spring, MD 20910 202-387-1968