The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. They encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities. They have nearly 700 state and local chapters nationwide. 800-433-5255
The Angelman Syndrome Foundation is the largest non-governmental funder of Angelman syndrome-specific research. Angelman Syndrome Foundation 3015 E. New York Street, Suite A2 #285 Aurora, IL 60504 800-432-6432 email: Info@angelman.org
This organization provide information about hearing loss, provides scholarships and financial awards. It also promotes early detection of hearing loss in infants, publishes books about deafness, and advocates for the rights of children and adults who are hard of hearing and deaf. They have an online community to join, as well as emails that communicate happenings in the community. Alexander Graham Bell Association for the Deaf and Hard of Hearing 3417 Volta Place NW Washington, D.C. 20007 202-337-5221 or TTY 202-337-5221 email: info@agbell.org
f) ADvancing States was founded in 1964 under the name National Association of State Units on Aging (NASUA). In 2019, the association changed its name to ADvancing States. Today, ADvancing States represents the nation’s 56 state and territorial agencies on aging and disabilities and long-term services and supports directors. 202-898-2578
ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. http://adapt.org/adapt-groups/ to find a group email: adapt@adapt.org
A social network technology platform that gives youth with disabilities, parents, and professionals a safe secure and positive online experience, removes social barriers and reduces the stigma with being different, and promotes independence and better. Ability Online Support Network 114 Sun Row Drive Etobicoke, ON M9P 3J5 416-650-6207 email: information@abilityonline.org
AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. AAIDD's goals are to: enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities; promote the development of a society that fully includes individuals with intellectual and developmental disabilities; and sustain an effective, responsive, well managed, and responsibly governed organization. American Association on Intellectual and Developmental Disabilities (AAIDD) 8403 Colesville Road, Suite 900 Silver Spring, MD 20910 202-387-1968
UCP works closely with its affiliates on issues that open doors for people with disabilities. From home ownership to health care reform, inclusive education to competitive employment, UCP has established itself as a leader in the disability community and as a strong voice for individuals with disabilities and their families. They have chapters throughout the nation.
For people with intellectual disabilities, Special Olympics is the place where they have an opportunity to participate in their communities and develop belief in themselves. For athletes, Special Olympics sports provide a gateway to empowerment, competence, acceptance, and joy.
The National Association of State Directors of Developmental Disabilities Services (NASDDDS) represents the nation's agencies in 50 states and the District of Columbia providing services to children and adults with intellectual and developmental disabilities and their families. NASDDDS promotes visionary leadership, systems innovation, and the development of national policies that support home and community-based services for individuals with disabilities and their families.
